The Kenya Haemophilia Association (KHA) today held a high-profile press briefing at the Sarova Panafric Hotel to commemorate World Haemophilia Day under this year’s global theme: “Women & Girls Bleed Too.” The event spotlighted the often-overlooked experiences of women and girls living with bleeding disorders, calling for urgent reforms to improve diagnosis, care, and inclusion.
Chaired by Dr. Kibet Shikuku and Professor Karanja Njoroge, Chair of KHA’s Board of Trustees, the gathering brought together health experts, patients, advocates, and policymakers. Hon. Dr. David Ole Sankok, a Member of the East African Legislative Assembly (EALA) and a longtime disability rights champion, was the event's chief guest.
In a passionate address, Dr. Sankok emphasized the need for health equity and policy action, especially for women and girls who suffer silently due to undiagnosed bleeding disorders. “For too long, bleeding disorders in women have been misdiagnosed or dismissed entirely. This must end. The government has a duty to provide inclusive health services that leave no one behind,” he said.
The KHA leadership issued a firm call to action, urging the Government of Kenya to commit to sustainable funding for haemophilia care, establish a nationwide screening program, and ensure comprehensive, gender-sensitive healthcare. They highlighted that while haemophilia and related disorders have historically been viewed as male conditions, women and girls also experience serious symptoms — often without proper recognition or treatment.
Dr. Shikuku stressed that awareness, early diagnosis, and access to treatment are critical. “We need a national registry, consistent supply of clotting factors, and trained healthcare providers at all levels. Women and girls must be included in every step of this journey,” he said.
Prof. Njoroge echoed these sentiments, adding that donor reliance is not a sustainable path forward. “We urge the government to take full ownership of haemophilia care in Kenya, with deliberate investments in infrastructure, personnel, and education,” he noted.
The event featured testimonials from patients and caregivers, who shared the challenges of navigating a healthcare system that often overlooks female presentations of bleeding disorders. Many called for improved diagnostic tools, training for medical professionals, and public education campaigns to reduce stigma and enhance understanding.
World Haemophilia Day is observed globally every April 17 to raise awareness about haemophilia and other inherited bleeding disorders. This year’s theme underscores the importance of gender equity in care, reminding the world that “Women & Girls Bleed Too.”
As the event concluded, KHA reaffirmed its commitment to advocacy, collaboration, and empowerment, pledging to work with stakeholders at every level to ensure that no one is invisible in the fight for better haemophilia care in Kenya.
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