The Horror and Challenges of Those Suffering From Cerebral palsy and Epilepsy
From left is Rachael K Foundation Organizing secretary Ms.Agnes , The CEO Mr.Wilson Ondara , CEO Modern Hospital Komarock Dr.Nyamu and Kenya Director Rachael K Foundation Professor Davis Barasa.
The number of children living with palsy and Epilepsy has increased in the recent past in Kenya yet its treatment is very expensive beyond common man’s reach leading to deaths.
But Rachel Foundation has come out to help children with such complications free of charge and also open business for their parents for them to take care of themselves.
Helen Ouma took this child while he was abandoned in Nairobi and she took the responsibility of taking care of him thirteen years ago.
Despite having his own four children without any disability, this one has taken him as his special kind and always taking care of him.
“I found the child dumped 13 years ago, there were four of them but three of them were dead but this one was alive but with disabilities, I decided to take the child and took him just like my own child,” Ouma said.
“I am usually forced to lock him inside the house so that I may go to look for a job.
Wilson Ondara CEO of Rachael Foundation says it’s sad that people don’t know how to deal with the condition thus worsening instead of making it better.
“People don’t know how to deal with this situation due to lack of awareness. We are way behind compared to other countries but we can get there
and ensure that the children are taken good care of,” Ondara says.
Rachael my daughter his daughter now 22 years and she is still a special needs kid and she can’t talk until they understand her.
Jane Waitherero with a child with cerebral palsy says it’s hard to accept a child with such a condition.
“After giving birth to child it has taken me 4 years fearing to get another child since he or she might turn to be having the same condition since they call you a parent of children with a disability.
Matthew Owino Ottamax former goalkeeper says his younger son got a baby who had cerebral palsy as a young family and unfortunately they lost the child.
Doctors have revealed that children with such complications use approximately sh 50,000 per month which cannot be afforded by a common man.
Dr. Davis Barasa Director Rachael Foundation says cerebral palsy is one of the forgotten cases and people outside are struggling to take care of those kids.
Rachel Foundation has been of great help to over 200 children with thee complications from the Country.
The CEO of the Foundation who also has a child with epilepsy says there is a need for the government and all stakeholders to come out and help such children whose number has increased and thye need help.
“These families are in dire need of support and if u visited them and see the situation they are living in you will shade tears,” Dr. Davis Barasa says.
Wilson Ondara CEO of Rachael foundation says the organization is not government funded.
“It’s just a small NGO that’s why we are requesting Kenyans to stand we us so that we can support many who are suffering out there,” he says.
Valent Adhiambo has stayed with the epilepsy condition for over thirty years and she says she has been discriminated against whenever he goes.
“I am epileptic, I have lived with almost all my life and am now 30 years old. I have been working in different organizations but the worst thing is when people are being laid-off I am the first one they see due to my condition and it’s sad that in Kenya they are no drugs for epilepsy,” Adhiambo says.
Rachel Foundation has called on wellwishers to come out in large numbers and help them reach many people.
Dr. Oduor William Omondi Oduor says “I have personally donated a full lorry of pampers to this foundation and these people have seen how they are living. We build toilets but these people need only pampers. Let’s help them,”
Matthew Owino Ottamax former goalkeeper says “It’s sad that men after seeing that their child have such conditions they run away and leave all the responsibility to the woman, this must end,”
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